It's amazing the feeling that comes with being understood. We had a picnic on Sunday with some amazing families who's children also have trachs. I felt so normal for those three hours, I didn't have to explain anything to anyone I was just understood. All the kids had lunch together, tubes and formula was on the menu. I was even able to share my homemade formula recipe with the other moms, something that is usually useless in any other conversation. This was my first experience of a support group and now I understand why they are so important:
1. Sometimes it seems like not even doctors, the ones who are suppose to know everything, don't truly understand what you go through or what you're trying to tell them, but when you get around other people who live what you live day in and day out they can't help but understand you.
2. I think it helps to ground all of us and help us reflect on the journey we walk everyday. I looked around at all the other families there with so much respect and I feel honored to be a part of such a unique group of people. I also feel so blessed to be able to meet all these incredible children, they truly are special and you can't help but notice when you get to be around their sweet spirits!