Noel is doing much better now that she doesn't have barium inside of her. She is even taking small, very very small, amounts of formula through her g-tube. And during this admission we finally talked about weaning her off the Vent!!! Yay!
Her G.I. issues have some what overshadowed the progress she is making, it wasn't until a new attending (one we've haven't met yet, go figure) saw her and asked the all important question why is she on a vent? Well we know why...RSV. But why is she still on a Vent??? He saw how well she was sitting on her own and how interactive she was and said there should be no reason that she can't be off the vent for at least part of the day. Oh yay progress on one front! So the plan is to start her out slow for one to two hours a day off her vent and on a Cardin valve; this valve uses the pressure of 8 liters of oxygen to help keep Noel's lungs inflated so she doesn't have to do so much work on her own. But with this valve she will be initiating all of her own breathing. We have been trying this for small amounts of time and so far so good.
So the G.I. plan is to still go to Ohio to see specialist's, but it might not be for a couple of months. I'm looking into getting an Angel Flight to get Noel out there, but if anyone has any other ideas I'm all ears!
Here are some pictures from our month stay in the hospital that I wanted to share with you:
Hope you have a great day! Thanks for checking on Noel,