The post I didn't want to write...

So from the title you can imagine that this is not going to be a very happy post. I finally got in touch with Noel's GI Doctor this morning because yes her symptoms are getting worse...again. She has been retching at least every 30 min since yesterday, the last time I feed her was yesterday at 11:00am and this morning she is still retching and she has ton's of gastric out put coming out of her stomach. When I say retching I mean full body, tongue out, saliva pooling retching. Poor little girl she has been sleeping all morning, the retching is wearing her out. So back to the discussion with the Doctor; he told me again that it sounds like she may have Chronic Intestinal Pseudo-Obstruction and he told me for the third time she may need a transplant. This word has been brought up a number of times during all of our hospital stays, instead of saying it... I was hoping it would go away. I was hoping that things would get better... I was hoping I didn't have to tell you that Noel might need an intestinal transplant. But that's where things stand right now, she may need one. Our trip to Ohio probably won't bring us the answers we would hope for, they'll probably only answer the question of does she need a transplant? Granted we are still months away from a decision and months away from a surgery but I just wanted to share this new information with you and ask for your prayers.
Tina

GO GREEN and DONATE LIFE

April is Organ Donation Awareness Month; please take the time to consider being an organ and tissue donor. Lord knows you can't take your organs with you when you die, so why not leave them for someone else to continue living. None of us will ever now when we or a loved one might be the recipient of organs, if those people hadn't choose to donate life than we would never get the life saving organs. Right now a little girl is fighting for her life in Nebraska, she's about to undergo another life-saving transplant surgery, if you need a reason to donate life please visit her website and see all that she has been through; I'm sure that's all the convincing you'll need. Please be aware that you have to do more than just sign the back of your license to be an organ donor, you also need to sign up with the Donor Registry in the State you live in, Here is a link you can go to. Please talk to your families and friends about the decision you made to be an Organ donor and talk to them about becoming a donor also; give a gift that will never stop giving.

Update: Noel is out of the Hospital and she's doing great! They think she just had a respiratory virus.

Yes we're back....................

Urgh!!! We got re-admitted to the hospital on Tuesday afternoon... I can't believe it. Well the good news is that Noel is doing fine. She spiked a fever on Tuesday and any time her temp goes above 101 it's an automatic 48 hour trip to the hospital. The reason for that is since she has a central line she can get a blood infection any time, so we always have to be cautious and bring her in to the hospital. I'm starting to think that Noel's is going to need therapy though, she really likes it here at the hospital; once her temp came down you would have thought I had taken her to Disneyland... silly girl. I think she likes it here because she gets so much attention and on trips like these she doesn't get poked and prodded much. The plan is to discharge tomorrow as long as nothing grows in her cultures overnight. Somedays I wonder is God trying to teach me something? Am I just not getting it? Maybe it's patience or thankfulness or.... well I'm willing to learn. Thanks,
Tina