What "sick" means for Noel

When I say Noel is "sick," sometimes I kinda wish she really was sick. I know that doesn't sound good, but let me explain; When someone is sick it usually means there is some kind of medicine that could be given and then they will get better. For Noel this isn't the case. She has a condition called Intestinal Pseudo Obstruction it's a big name that means her stomach suddenly stops working. She will do fine for about three weeks and then all of a sudden she can't eat anything. Right now I'm concerned because she's too skinny. I can't feed her for about two days when her stomach stops and unfortunately her little body is showing it. There isn't just some medicine that she can take that will make her "all better." In fact there isn't much even the doctors can do to help her. The one thing they can do is give her TPN which is pretty much food through her veins; she was on TPN 9 months last year. I wonder now if that might be our next option, TPN, which comes with it's own set of complications. I hope this help you understand a little bit more and thank you so much for your prayers. I know the Lord is bigger than anything. I know that He is the great physician and that's why I'm turning to Him and asking all of you to pray! Thanks,
Tina